rare medical condition

(100 results)
Nine-year-old boy shares touching message about medical condition1m00s

Nine-year-old boy shares touching message about medical condition

A touching video has emerged from the United States of a young boy sharing a hopeful message about living with Schwartz-Jampel Syndrome (SJS). In the clip, which was filmed in Pennsylvania, nine-year-old Giovanni holds up signs explaining that there is more to him than his rare condition. "I like cats and dogs," one of the signs reads. "I want to be a vet one day," he writes on another. And then little Giovanni signs off saying "I am Giovanni, not SJS" and blows a triumphant kiss for the camera.

Twins With Rare Condition Born Holding Hands1m13s

Twins With Rare Condition Born Holding Hands

What’s more rare than identical twins? Mono mono identical twins, the term for when twin babies have not only split from the same egg, they share the same placenta and amniotic sac while they’re in the womb. Incredible already, right?

TipHero
Published: April 6, 201744,387 viewsVirality: 5%
Body-Positive Teen With Rare Condition Challenges Beauty Standards3m24s

Body-Positive Teen With Rare Condition Challenges Beauty Standards

Teenager Isa-Bella Leclair, whose leg grew to twice its normal size is inspiring body positivity by posing in a bikini in spite of her condition. Isa-Bella, 19, was born with a genetic condition called Parkes Weber Syndrome, which caused her right leg to swell. The college student's leg grew to around 40lbs - leaving her unable to play most sports or tight-fitting jeans. However, the inspirational teen is now out to challenge modern beauty standards by showing her confidence in her body.

Rare Condition Leaves Woman with Nearly 6,000 Tumors3m05s

Rare Condition Leaves Woman with Nearly 6,000 Tumors

A shocking condition has left a woman with nearly 6,000 large tumours covering her entire body. Libby Huffer, 44, was diagnosed with Neurofibromatosis Type 1, a rare skin disease that causes non-cancerous lumps, when she was five years old. The mum from Fort Wayne in Indiana, USA, is thought to be one of the few people in the world with the condition. She lived a happy, normal life until her teenage years when hundreds of bumps began to develop on her skin. After the first outbreak, she was severely bullied by people who thought she was contagious and labelled the poor woman Lizard-Breath. The cruel comments were so bad, she changed her name from Elizabeth to Libby to avoid the painful reminder of the bullying. In 1993, while pregnant with her daughter, Libby's hormones caused her tumours to multiply into the thousands. Now the mum has more than 5,500 tumours from her forehead to her feet and suffers chronic pain. Despite ten operations to remove the lumps, surgery has failed and some of the tumours have even grown back. Libby’s last hope is for specialist treatment to obliterate thousands of the tumours in a five hour session. Recently she braved showing her skin in public in the hope of trying to attract funding for the treatment. IF YOU WISH TO MAKE A DONATION TO LIBBY'S SURGERY FUND YOU CAN DO SO HERE: https://www.gofundme.com/LibbysNFsurgery Sourced By: Joshua Saunders Edited By: Keiran Fuller Connect with Caters: Follow us on Twitter: https://twitter.com/Caters_News Like our Facebook: https://www.facebook.com/CatersTV Visit our website: https://www.catersnews.com Company Information: Caters TV is owned and operated by Caters News Agency Ltd, an international multimedia content provider. We supply news, picture, video and feature stories to the world’s largest media publishers. All videos aired on this channel have been licensed from their rightful owners. For media / licensing / broadcast usages, please contact video(at)catersnews.com www.catersnews.com

Caters_News
Published: November 25, 20166,613 viewsVirality: 5%
Nine-Year-Old Boy Has 'Beach Ball' Belly Due To Rare Condition1m41s

Nine-Year-Old Boy Has 'Beach Ball' Belly Due To Rare Condition

Nine-years-old Shah Gul Mazar lives in Pakistan. When he was one, things went from “normal” to "BAD" within weeks. Doctors later discovered that Shah had Hirschsprung’s disease, a birth defect which affects the large intestine. It caused his colon to swell, and even after treatment to deal with the pain, the boy still suffers. More advanced medical attention is available, but his poor family cannot afford it. The parents have been praying for a miracle, and they may have just received one. A good Samaritan named Fida Hussain Mastoi has offered to fly the family to Karachi, where there’s a hospital that can help. His parents are hoping that, with treatment, their son can live a good life with a bright future ahead of him. Our thoughts and prayers are with you Shah. We hope you will soon regain strenght.

nollygrio
Published: August 3, 2017Updated: August 4, 2017
Rescued kitten suffers rare condition, unable to open her mouth2m37s

Rescued kitten suffers rare condition, unable to open her mouth

Betty the cat has been rescued by Noah's Ark Rescue & Sanctuary. She was born unable to open her mouth, so her caretakers must liquidize her food so that she can drink it. X-rays and scans have been unsuccessful in finding a cause. She cannot eat, yawn or even meow. She desperately wants to play and bite her toys but can't.

noahsarkrescue
Published: December 11, 2016Updated: December 12, 20167,728 viewsVirality: 105%
Adoptive Mom Abandons Baby In Hospital After Being Born with Rare Condition1m53s

Adoptive Mom Abandons Baby In Hospital After Being Born with Rare Condition

This is five month old Abigail Lynn, she born with a rare genetic condition called Treacher Collins Syndroms that caused her facial features, such as her cheeks, bones, and jaw, to be underdeveloped. Her biological mother, Christina Fisher intended for her daughter to be adopted by another family due to financial complications. However, when the adoptive mother came to visit the newborn, she abandoned the baby and left the hospital after seeing her face. Fisher says that this was a sign that Abigail should be with her and her family. Her biological mother, Christina added that she is a precious miracle that was meant to be with her real family. She has now decided to raise Abigail on her own, giving this beautiful baby a life of happiness she deserves, despite her looks. May Abigail bring lots of memories into your heart! I look forward to seeing her become a superstar. Like this story? Be sure to Subscribe for more.

nollygrio
Published: April 4, 2017Updated: April 5, 20171,616 viewsVirality: 30%
Teen Born With A Rare Bone Condition Got Inspired To Become A Surgeon Herself1m20s

Teen Born With A Rare Bone Condition Got Inspired To Become A Surgeon Herself

If you saw her on the street, she would look to you like a very normal teenage girl. But for the 16 years that she has been on this world, Miranda Tymoschuk has had 11 major leg surgeries, one of which to lengthen her leg. Miranda was born with a rare condition called posteromedial bowing of the tibia and fibula, which means that one of her legs was bent up slightly and shorter than the other. Her stays at the Royal Columbian Hospital started when she was only about 7 years old, in Grade Two. She would wear a painful metal brace that would keep her leg straight so that it might heal longer. The discreteness of her condition makes for some really awkward situations in public. When Miranda and her mom decided to have a lunch at a local restaurant, after a trip to the doctor’s, they had to wait in line for some 15 minutes. All that standing made Miranda tired and in pain, so she sat down in a chain left to the side. The teen’s actions made people judge her, even scold her loudly. One lady from the line even approached her and told her that she should offer the seat to someone older, even though everyone waiting declined the seat. Miranda keeps it on the bright side though, saying that she forgives these people, since not everyone can see the scars and difference in anatomy. The cheerful tee says that the excellent care and positive attitude of the staff at RCH has inspired her to become a pediatric orthopedic surgeon herself! Credit to 'Royal Columbian Hospital Foundation'.

Aspiring Model's Rare Condition Makes Her Leg Swell With 3 Litres Of Excess Fluid5m01s

Aspiring Model's Rare Condition Makes Her Leg Swell With 3 Litres Of Excess Fluid

An aspiring model has bared her leg for the first time in ten years after a rare condition led to it ballooning in size. Meagan Barnard’s lymphedema left her feeling suicidal and alone after she refused to talk with her family and friends about it. She hid her leg under baggy clothes and refused to wear a dress or a skirt for more than a decade when her school friends called her the Michelin Man and other cruel nicknames. Amazingly Meagan even managed to hide the condition from her boyfriend of two years, Robert Neidenfeuhr, 27. Despite her insecurities Meagan has decided to go public about the condition in the hope that other young girls do not suffer in silence like she did. Meagan’s condition began in puberty when her lymph nodes did not grow large enough to process fluid, which then remained trapped in her leg. The result was extreme swelling in her right leg with up to three liters of excess fluid being stored at any one time. She just woke up one morning with her foot swollen, but she didn’t feel any pain so she just brushed it off. Doctors have told her that it might have been caused by some injury or lack of development of the lymph nodes. Health insurance companies in the USA have denied her the treatment she needs , since they consider her condition to be cosmetic. This is why she has decided to self fund the procedure with the help of her friends and family. Videographer / director: Ruaridh Connellan Producer: Dan Howlett, Nick Johnson Editor: Kyle Waters, Ian Phillips

BarcroftTV
Published: December 23, 201664,209 viewsVirality: 3%
RTG Medical6m57s

RTG Medical

RTG Medical believes in great company culture! And they are also invested in the community! We'll find out more about the company's partnership. And they're hiring! How to find out if a job there could be right for you!

KMTV
Published: June 27, 20171 views
RTG Medical5m56s

RTG Medical

RTG Medical believes in great company culture! And they are also invested in the community! We'll find out more about the company's partnership with the Nebraska Humane Society. And they're hiring! How to find out if a job there could be right for you!

KMTV
Published: August 3, 2017Updated: August 4, 2017
RTG Medical5m56s

RTG Medical

RTG Medical believes in great company culture! And they are also invested in the community! We'll find out more about the company's partnership with the Nebraska Humane Society. And they're hiring! How to find out if a job there could be right for you!

KMTV
Published: August 3, 2017