Can My Ventilated Dad in ICU with MND Get a Tracheostomy and Go Home with INTENSIVE CARE AT HOME?

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Can My Ventilated Dad in ICU with MND Get a Tracheostomy and Go Home with INTENSIVE CARE AT HOME?

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality care services for long-term ventilated adults and children with tracheostomies, also otherwise medically complex adults and children at home, including Home BIPAP (bilevel positive airway pressure), Home CPAP (continuous positive airway pressure), home tracheostomy care when adults and children are not ventilated. We also provide Home TPN (total parenteral nutrition) which is IV nutrition. We also provide IV potassium, IV magnesium in children at home, as well as IV antibiotics at home. We also provide port management, central line management, PICC (peripherally inserted central catheter) line management, Hickman’s line management, as well as palliative care services at home. It also includes ventilation weaning at home.

We have also provided an emergency department bypass service for the Western Sydney Local Area Health District and where we send our critical care nurses into the home to prevent emergency department admissions.

Now, today I have a question from Jerry, and Jerry says,

“Hi Patrik,

My dad is 68 years old, and he has been in ICU for eight days. Now, he has been having motor neurone disease for the last 10 months. He now developed sepsis and was hospitalized for the second time after four months. He has a PEG (Percutaneous Endoscopic Gastrostomy) tube, but his large intestine was not getting enough oxygen and he had an internal ischemia. Part of his large intestine was removed. They did a colostomy procedure on him. He was in a medically induced coma for the last four days during these procedures. They did a CT scan of the abdomen to discover why there is not enough oxygen.

Because of the MND (Motor Neurone Disease), he can’t talk, walk, or swallow. His breathing and oxygen were not at the safest number, so he was intubated on a ventilator again yesterday. He’s on 55% to 60% FiO2 (Fraction of Inspired Oxygen) or oxygen on the ventilator. The GI doctor wants to strongly recommend taking him off life support. It’s only been a day so far. He is intubated with no sedation. The nurses are saying he is weak but still he’s tolerating the intubation with just pain medications, and he’s drowsy and opens his eyes.

What can we do?”

Well, that’s a great question, Jerry. We have seen this situation many times. So, for example, one solution for your dad might be a tracheostomy and then go home with Intensive Care at Home. So, let me elaborate on this in more detail.

We are currently looking after clients at home with MND (motor neurone disease) that are ventilated and have a tracheostomy, and that is their choice. They do want to live. Some MND clients or MND patients for that matter, they get diagnosed with MND and then they don’t get a tracheostomy. Although they don’t want a tracheostomy, they go on BIPAP and eventually BIPAP can be removed, and they can pass away if that’s what they want. But many MND clients don’t want that, they want to live, and they want the tracheostomy, and they want to spend quality time with their family, which is an option for your dad in this situation as well.

Continue reading at: https://intensivecareathome.com/can-my-ventilated-dad-in-icu-with-mnd-motor-neurone-disease-get-a-tracheostomy-and-go-home-with-intensive-care-at-home/