Bullied Because My Skin Grows Too Fast | BORN DIFFERENT
5 years ago
62
harlequin ichthyosis
skin disorder
scaly skin
rare medical condition
Hong Kong
rugby referee
rugby
skin problems
skin grows too fast
Mui Thomas
mental health
A WOMAN who was once suicidal due to having a rare disorder that causes scaly skin, now is living life to the full. Mui Thomas, who resides in Hong Kong, suffers from a rare skin disorder called harlequin ichthyosis. Harlequin ichthyosis causes scaly skin, which cracks creating open wounds that leave suffers vulnerable to infection. The oldest survivor of harlequin ichthyosis is 35 years of age. At 26 now, Mui is one of the oldest known survivors and the world's first rugby referee living with this condition.
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