I’m 23 And Turning To Stone | BORN DIFFERENT
4 years ago
51.9K
Born Different
Fibrodysplasia Ossificans Progressiva
FOP
rare disease
medical diagnosis
turning to stone
mobility issues
Carli Henrotay
rare condition
medical mystery
clinical trail
A RARE medical condition has left a young woman in effect ‘turning to stone’. At just 23-years-old Carli Henrotay’s mobility is already severely restricted: she can’t raise her arms above her head and uses a wheelchair to get around; while her jaw only opens a few millimetres. Carli has Fibrodysplasia Ossificans Progressiva (FOP), which causes muscle and connective tissue to slowly change into bone. FOP has a life expectancy of 40 and there are currently only 800 people worldwide known to have the condition. But despite suffering from the condition, Carli lives as positive a life as possible and recently moved in with her boyfriend of six years, Billy.
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