Bladder Exstrophy

George Hunt - Courage to Shine - Jan 2024 George is a business man, but had a few obstacles growing up. Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Cheyenne Riggs l Professor Flex l Courage To Shine™ l Turning Adversity to Triumph l Aug 2023 - http://www.courage-to-shine.org Cheyenne Riggs or Professor Flex is a professional roller derby athlete from Oklahoma. She was born with bladder exstrophy, and still is a great roller derby athlete Read her story at: https://courage-to-shine.org/2023/09/14/cheyenne-riggs-professor-flex-825-roller-derby-athlete/ Film Credit: HitSquad TV https://www.youtube.com/c/HitSquadTv15 Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #campkorie #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Jessica Sanchez l Courage to Shine™ Award l July 22 2023 -http://www.courage-to-shine.org Website: https://courage-to-shine.org/2023/07/21/jessica-sanchez-2023-courage-to-shine-lisha-martinez-adam-young-award-recipient/ Courage to Shine™ Thomas Exler, Founder & Chairman Association for the Bladder Exstrophy Community (A-BE-C) Pamela Artigas, President & Executive Director Thomas Exler, Vice President Courage to Shine™ Lisha Martinez & Adam Young Award Jessica Sanachez By Jessica Sanchez My name is Jessica Sanchez. You may recognize me from the Courage to Shine article I wrote back in 2016. I am currently 33 years old and still reside in Washington State. Born with classic bladder exstrophy, I have strived to live a life where this birth defect does not define me, it’s just a part of my story. If you were to ask anyone close to me who I am they would tell you I am a wife, mother, sister daughter, worship leader, administrator, friend, and a woman of faith. Life with bladder exstrophy hasn’t always been easy but in my case, I truly believe I’m one of the lucky ones. The unknown my parents experienced the night I was born ended up resulting in a journey I wouldn’t change for the world. On March 30th, 1990, my parents, Alan and Sherrie Croshaw welcomed their 1st child into the world; a 7 pound, 10 ounces little girl. Shortly after the delivery while the nurses were examining all my fingers and toes, my parents began noticing there was some confusion. After a considerable amount of time, the doctor walked into the room with a textbook and said, “I think this is what your daughter has.” After informing my parents that I needed to be flown to a larger hospital they were given the choice of Spokane or Seattle. The start of my luck with bladder exstrophy began the moment they chose Seattle. I will forever be grateful for that decision because it meant that I was going to Seattle Children’s Hospital and was now a patient of Dr. Michael Mitchell, a world-renowned pediatric urologist. More info at: https://courage-to-shine.org/2023/07/21/jessica-sanchez-2023-courage-to-shine-lisha-martinez-adam-young-award-recipient/ Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #campkorie #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Paul Anthony l Bladder Exstrophy l Police Officer l Courage to Shine l April 2023 - http://www.courage-to-shine.org Paul is a Police Officer and is Married with two step sons Paul's Courage to Shine Article: Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Camryn Young l Bladder Exstrophy l Courage to Shine l April 2023 - http://www.courage-to-shine.org Courage To Shine™ Article https://courage-to-shine.org/2023/04/13/camryn-young-this-new-chapter/ Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Camryn Young l Bladder Exstrophy Courage to Shine l April 2023 - http://www.courage-to-shine.org Courage To Shine™ Article https://courage-to-shine.org/2023/04/13/camryn-young-this-new-chapter/ Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Priyanka Kallur l OEIS/Cloacal Exstrophy l India to Med School l Courage to Shine™ l April 1, 2023 - http://www.courage-to-shine.org Priyanka from India to Medical School. She has overcome all of life's obstacle put in her way Courage to Shine article: https://courage-to-shine.org/2023/03/31/priyanka-kallur-overcoming-mental-boundaries/ Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine ™ website: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Camyrn Young l Bladder Exstrophy l Body Talk with Becks Ep 33 & 34 l Aug 29, 2023. l Courage to Shine - https://courage-to-shine.org/ Welcome to Body Talk with Becks, brought to you by Becks Carlyle! In this week's episode, In this week's episode Ready to Be An Adult, I interview Camryn, a young woman with Bladder Exstrophy who has been receiving treatment at John Hopkins Thank you for listening! If you wish to come on the show as either an expert or to share your story, please use the contact page. Body Talk with Becks - https://www.bodytalkwithbecks.com/ Host: Becks Carlyle Originally Ep 33: https://youtu.be/hKUQG7diHQE Originally Ep 34: https://youtu.be/agyA_YNhBag Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine ™ website: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Paul Kerensa Young l Navelless Gazing l BBC l Bladder Exstrophy l Body Talk with Becks Ep 32 l Courage to Shine™ l Aug 22, 2022 - https://courage-to-shine.org/ Welcome to Body Talk with Becks, brought to you by Becks Carlyle! In this week's episode Navelless Gazing, we chat with Paul Kerensa about growing up with Bladder Exstrophy and trying to bring the topic into the entertainment industry. Courage to Shine™: Paul is the writer of many of BBC TV shows and is a BBC Radio commentator, as well as a great stand up comedian. Body Talk with Becks - https://www.bodytalkwithbecks.com/ Host: Becks Carlyle Originally: https://youtu.be/wV6h2-K5eNI Article on Courage To Shine™: https://courage-to-shine.org/2019/02/07/paul-young-im-going-to-talk-about-me/ From Wikipedia: Paul Kerensa (born 1979 in Truro, Cornwall) is an English comedy writer and stand-up comedian. He studied at Royal Grammar School, Guildford and the Guildford School of Acting.[1] In 2002 Kerensa won ITV's 'Take The Mike' Award, and was a finalist in The Daily Telegraph Open Mic Awards and the BBC New Comedy Awards.[2] Kerensa won the BBC Radio Titheridge Prize, leading to writing credits on many major BBC Radio 4 shows. He wrote, and briefly appeared in, the television series Miranda.[1][3] He was a co-writer on the television series Not Going Out.[3] He appeared regularly on the segment "Pause for Thought", during The Chris Evans Breakfast Show on BBC Radio 2.[1][3] Kerensa was writer on the 2015 series of TFI Friday.[1] As of 2016 he was hired by Chris Evans as a writer on the 2016 series of Top Gear.[1][3] In 2013 Kerensa authored the book So A Comedian Walks Into A Church: Confessions of a Kneel-Down Stand-up,[4] followed in 2014 by "Genesis: The Bibluffer's Guide". AWARDS British Comedy Awards 2010, Best New Comedy - Winner (Miranda) BAFTA 2010, Best Scripted Comedy - Nominee (Miranda) Royal Television Society Award 2010, Best Scripted Comedy / Best Writing - Nominee (Miranda) Royal Television Society Award 2007, Sitcom Breakthrough - Winner (Not Going Out) British Comedy Awards 2007, Best New Sitcom - Nominee (Not Going Out) Rose d'Or 2007, Best Sitcom - Winner (Not Going Out) ITV1's Take The Mike 2002 - Winner Daily Telegraph Open Mic Awards 2002 - Finalist BBC New Comedy Awards 2002 - Finalist Wilkinson Sword Cutting Edge of Comedy 2002 - Finalist AWARDS British Comedy Awards 2010, Best New Comedy - Winner (Miranda) BAFTA 2010, Best Scripted Comedy - Nominee (Miranda) Royal Television Society Award 2010, Best Scripted Comedy / Best Writing - Nominee (Miranda) Royal Television Society Award 2007, Sitcom Breakthrough - Winner (Not Going Out) British Comedy Awards 2007, Best New Sitcom - Nominee (Not Going Out) Rose d'Or 2007, Best Sitcom - Winner (Not Going Out) ITV1's Take The Mike 2002 - Winner Daily Telegraph Open Mic Awards 2002 - Finalist BBC New Comedy Awards 2002 - Finalist Wilkinson Sword Cutting Edge of Comedy 2002 - Finalist AND FINALLY - SOME OF THE PEOPLE WHOSE MOUTHS I'VE PUT WORDS IN (ie. WRITTEN FOR) Matt Le Blanc, Maureen Lipman, Kelsey Grammer, Joanna Lumley, Lee Mack, Tim Vine, Brian Blessed, Miranda Hart, Chris Evans, Doon Mackichan, Timothy West, Celia Imrie, Nicholas Lyndhurst, Suggs, Jason Manford, Jon Culshaw, Punt & Dennis, Emma Bunton, Sophie Ellis-Bextor, Roy Hudd, Bobby Ball, Tony Hadley, Toyah Wilcox, Gary Barlow, Alistair McGowan, Barry Courage To Shine™, Turning Adversity to Triumph, Courage To Shine ™ website: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #paulkerensa #young #paul #bbcnews # mattleblance #topgear #bbc #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Kylee Hunter Morgan l Bladder Exstrophy l My Parents Fought For Me l Body Talk with Becks Ep: 29 l Aug 1, 2022 l Courage to Shine - https://courage-to-shine.org/ Welcome to Body Talk with Becks, brought to you by Becks Carlyle! In this week's episode, My Parents Fought For Me I speak with Kylee Hunter about growing up with Bladder Exstrophy. We swap stories of seeing the same doctor in Seattle. Thank you for listening! If you wish to come on the show as either an expert or to share your story, please use the contact page. Body Talk with Becks - https://www.bodytalkwithbecks.com/ Host: Becks Carlyle Originally: https://youtu.be/SAC4HSeVgqI Courage To Shine™, Turning Adversity to Triumph, Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth-defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine ™ website: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine #KyleeHunter #courage #best #exstrophycampout #campout #camping #camp #laketahoe #californiabest #bladderexstrophy #bladder #ostomybag #bladderhealth #courage #scottland #urological #urologicalhealth #be #bladderexstrophy #bladder #bladderhealth #mitrofanoff #couragetoshine #courage #courageous #couragechallenge #comunity #abec #abc #health #healthcare #amazing #organization #organtransplant #kidney #kidneyhealth #kidneyfailure #kidneydisease #bladderproblems #bladderhealth #testimony #TestimonyTime #testimonytime #inspirational #inspirationalpost #inspirationalwords #inspirationalquote #inspirationalvideo #inspirationalvideos #inspirationalquotes #inspirationalspeaker #inspirationalqoutes #inspirationalthoughts #motivational #motivationalvideo #motivationalquote #motivationalspeech #motivationalquotes #motivationalmonday #motivationalvideos #motivationalspeaker #motivationalquotesdaily #motivationalquotesoftheday #Thanksgiving #thanksgod #thanks #thanksgiving #thanksgiving2022 #thanksgivingdinner #thanksyou #thankstoallah #thanksgivingmenu #ThanksgivingRecipes #miracle #miracles #miraclebaby #miracleshappen #miraclemorning #miraclesdohappen #miracleaestheticclinic #ilealconduit #urostomy #urostomybag #urostomylife #urostomysupport #urostomyfashion #urostomywarrior #VACTERL #anjachristoffersen #model #ciostomy

Pamela Artigas presented to John Gearhart MD the 2022 Richard W. Grady Humanitarian Award on Saturday July 9, 2022 John Gearhart MD is the Chief of Pediatric Urology at Johns Hopkins Children's Center 2022 International Exstrophy Conference in Baltimore, MD at the Maritime Conference Center (MCC) in Linthicum Heights, MD The Association for the Bladder Exstrophy Community A-BE-C relies solely on donations to continue its mission in supporting individuals and families with education, resources and community to help them navigate the medical and psychosocial issues relating to exstrophy at all stages of life. https://www.bladderexstrophy.com/ Pamela Artigas Intro to the 2022 International Exstrophy Conference in Baltimore, MD at the Maritime Conference Center (MCC) in Linthicum Heights, MD #bladderextrophy #exstrophy #conference #CLOCAL #baltimoree #maritime #bladder #gearhart #johnshopkinshospital #johnshopkins #urology #patients #heathyhumor #childrenshospital #pediatrics #maritime #MCC #ABEC #B2022 #bladderextrophy #exstrophy #conference #CLOCAL #baltimore #maritime #bladder #gearhart #johnshopkinshospital #johnshopkins #urology #patients #heathyhumor #childrenshospital #pediatrics #maritime #MCC #ABEC #b2022

Pamela Artigas - Welcome to the 2022 International Exstrophy Conference l Bladder Exstrophy l July 9 2022 Pamela Artigas, President of the Association for the Bladder Exstropjy Community The Association for the Bladder Exstrophy Community A-BE-C relies solely on donations to continue its mission in supporting individuals and families with education, resources and community to help them navigate the medical and psychosocial issues relating to exstrophy at all stages of life. https://www.bladderexstrophy.com/ Artigas Intro to the 2022 International Exstrophy Conference in Baltimore, MD at the Maritime Conference Center (MCC) in Linthicum Heights, MD #bladderextrophy #exstrophy #conference #CLOCAL #baltimoree #maritime #bladder #gearhart #johnshopkinshospital #johnshopkins #urology #patients #heathyhumor #childrenshospital #pediatrics #maritime #MCC #ABEC #B2022

English: In this 7th National Meeting on Bladder Extrophy, Cloac and Epispadias held by Napex, we will receive two representatives from the ABEC - Association for the Bladder Exstrophy Community, a partner entity based in the United States, which has similar purposes to those of Napex: Pamela Artigas, president, mother of a son with exstrophy, and Thomas Exler, vice president and patient with exstrophy. Both will chat about various issues related to bladder extrophy. We will also receive Tatiana Prade Hemesath, a psychologist from the Hospital de Clinicas de Porto Alegre – SC, psychoanalytic psychotherapist and master in Developmental Psychology, to talk about the Amigo Meu project, which supports the emotional preparation of children with urological malformations. The event will be broadcast simultaneously on our social networks Portuguese: .Neste 7º Encontro Nacional de Extrofia Vesical, Cloac e Epispádia realizado pelo Napex, receberemos dois representantes da ABEC – Association for the Bladder Exstrophy Community, uma entidade parceira sediada nos Estados Unidos, que possui propósitos semelhantes aos do Napex: Pamela Artigas, presidente, mãe de um filho com extrofia, e Thomas Exler, vice-presidente e paciente com extrofia. Ambos irão bater um papo sobre diversos assuntos relacionados a extrofia vesical. Também receberemos Tatiana Prade Hemesath, psicóloga do Hospital de Clínicas de Porto Alegre – SC, psicoterapeuta psicanalítica e mestre em Psicologia do Desenvolvimento, para falar sobre o projeto Amigo Meu, de apoio ao preparo emocional de crianças com malformações urológicas. O evento será transmitido simultaneamente em nossas redes sociais.

Pamela Artigas' Story i Association for the Bladder Exstrophy Community - https://www.bladderexstrophy.com/ #bladderexstrophy #exstrophy #bc #abec The Association for the Bladder Exstrophy Community A-BE-C relies solely on donations to continue its mission in supporting individuals and families with education, resources and community to help them navigate the medical and psychosocial issues relating to exstrophy at all stages of life. https://www.bladderexstrophy.com/

Association for the Bladder Exstrophy Community Adult with Exstrophy 2021 Presentation by Misty Blue Foster - https://www.bladderexstrophy.com/ #bladderexstrophy #exstrophy #bc #abec The Association for the Bladder Exstrophy Community A-BE-C relies solely on donations to continue its mission in supporting individuals and families with education, resources and community to help them navigate the medical and psychosocial issues relating to exstrophy at all stages of life. https://www.bladderexstrophy.com/

Brazilian Bladder Exstrophy Group Speech - October 2021 Bladder Exstrophy: https://www.bladderexstrophy.com/ The Association for the Bladder Exstrophy Community - The Association for the Bladder Exstrophy Community (A-BE-C) is an international support network for patients and families living with bladder exstrophy. We are united in a commitment to ensuring that all people affected by bladder exstrophy have the opportunity to realize their greatest life purpose and potential. Our community includes individuals living with bladder exstrophy, parent-exstrophy support groups, health care providers who work with patients and families living with bladder exstrophy, and others who share our commitment. We assist patients and families living with bladder exstrophy by providing education, support, and resources to help them navigate the medical and psychosocial issues relating to exstrophy. Courage To Shine ™, Turning Adversity to Triumph, https://courage-to-shine.org/ Courage to Shine™ was founded to acknowledge, motivational and inspirational individuals and/or groups of patients whom have overcome congenital genitourinary birth defects and/or major urological surgeries in their childhood (but not limited too), and have the courage, strength and determination, to transform that adversity to triumph later in life. Courage To Shine ™ website: http://www.courage-to-shine.org Facebook: https://www.facebook.com/couragetoshine/ Twitter: https://twitter.com/Couragetoshine1 YouTube: https://www.youtube.com/user/CourageToShine